What to know...
My name is Angie.
I have always had amazingly talented friends. Theatre, choir, band, orchestra, art, computers.... all over the place
Back in the early 2000s my friend and I would go see our other friends play shows and it became a lot to keep track of so I started making a list on my Xanga. Then had some links on Myspace. In 2 yrs time I got a large list of bands and I was checking pages and the pitch weekly to see what was going on. It was used often to share dates on Homegrown Buzz back in the day even.
Due to several reasons I had to stop what I was doing. Fast-forward 20yrs, After brain surgery and being let go from work, I had time again to go see shows with my sister and have made another group of amazing people. When I was talking to some of those friends I realized, I couldn't keep up again and my google calendar wasn't cutting it.
I am disabled and so my progress on the site will not always be rapid. I have a condition called Chiari Malformation. It along with fibromyalgia, seronegative rheumatoid arthritis and things I'm still trying to put names on.... it causes a lot of severe pain, fatigue and many down days.
I'm going to take this time to share a little more if you've read this far.
Chiari Malformation is a condition where your brain is actually to large for your skull. This causes the cerebellum to extend into the spinal canal. When it does this it blocks the flow of CSF and also can create great force on your brainstem. This can cause neck pain, ice pick headaches, poor use of hands and legs, dizziness, central sleep apnea, nerve damage and much more.
After having serious headaches where even a simple raise in my voice, cough, sneeze... would drop me to the ground, literally, I went to the dr. Took 10yrs before they finally sent me for an MRI. My cerebellum had herniated 10mm out of my skull. In March 2016 I had a decompression surgery (removed a piece of my skull and part of my C1) that greatly helped with a lot of symptoms. However almost 10 yrs later and I'm struggling greatly again. Somedays I'm fine, Somedays I look fine and I'm not. Somedays I'm using a cane and other days I can't get out of bed. It make things very difficult to remember and with keeping on schedule with things, such as working, and shows or other plans. This is the joy of an invisible illness. It is chronic and some of these can be progressive. I'm beyond grateful for all the support and encouragement I've gotten constantly from those around me.
This site is giving me something to keep using my hands and brain on the days I can. I do not get anything for doing this and I am just a patron.
Knowledge is power:
Chiari Info : https://www.ninds.nih.gov/health-information/disorders/chiari-malformations
Seronegative RA : https://pmc.ncbi.nlm.nih.gov/articles/PMC10660552/
Fibromyalgia : https://my.clevelandclinic.org/health/diseases/4832-fibromyalgia
Ehlers Danlos Syndrome : https://www.ehlers-danlos.com/what-is-eds/
Central Sleep Apnea (not obstructive) : https://my.clevelandclinic.org/health/diseases/central-sleep-apnea